Monday, June 13, 2011

UAB Visit

Riley had her 6-month checkup with Dr. Percy and Jane Lane at UAB. She will now go yearly rather than every 6 months. Mitch took her by himself since I was on the coast playing in our state tennis tournament (rough, I know). So I don't have a lot of details but wanted to make a record of the basic info from the appointment.

The good news is she gained weight since last time - she weighs about 32 pounds now. She also grew in height so her BMI is still only 12.9, but they were happy that it went up from her last visit and at this time they see no need to talk about a feeding tube.

Also at her last appointment we had talked about weaning her off her seizure medication (depakote) since we haven't seen any seizures since she started it, but now they suggest leaving her on her current dosage and eventually she will just outgrow it and we can see if she starts having seizures. So that's our plan for now.

The only bummer of the appointment is that her spine has started to curve slightly. We had an x-ray done to get a record of the starting point and will continue to monitor it.

And that about sums it up!

Wednesday, June 8, 2011

staying cool

Since the weather is around 100 degrees every day we decided to find a nice indoor activity for the whole family to enjoy and stay cool. We finally checked out the new Mississippi Children's Museum. It is really nice, and the kids all had fun!

Riley loves her water activities!

Addy and Morgan did too

Morgan found the train table
Riley and Dad learned about some trees

Riley decided to take off and check the place out on her own. I don't know what it is about summertime but she always walks so well over the summer!
Hey they're actually getting along in this picture. :)
We will definitely have to keep this place on our list of things to do over the summer!

Friday, June 3, 2011

IRSF Conference 2011

Once again, a busy but fun-filled weekend! This year's conference was in Boston. Mitch and I left the kids at home with Grandma and Grandpa this year. After a cancelled flight and a delayed flight, we eventually arrived in Boston 4 hours later than planned on Friday. We were both tired and hungry so we skipped out on the welcome reception and got a couple bowls of clam chowder - yum! We made it back for the crackerbarrels and got to see some people we haven't seen since last year, which is always my favorite part about these conferences!

Saturday's keynote speaker was Dick Hoyt and he was amazing! I left the kleenex in our hotel room because I am always determined not to cry at these things, but that was a mistake. A huge mistake. I bawled through his videos. Not only is he a runner, which is near and dear to me, but he pushes his disabled son in all his races. It was an incredible speech.

We usually focus on something we want to learn more about at these conferences and this year our focus was on reading and education. We feel like we have a better idea of what to ask of Riley's teachers now, and we also realized we need to read more often to Riley. Fortunately Addy is an amazing older sister and loves reading to her sister so she's been sleeping with Riley and reading to her just about every night. But we need to do more and work with her over the summer.

I think the most important message we took away from this conference was rather than assume Riley can't do something, let's assume she can instead. So that's what we're going to do!

I take significantly fewer pictures when my kids aren't along, but we did get one shot of Mitch and I when we went out to dinner with our friends Deberah and Patrick Sunday night.
If you notice I'm a little thick in the middle (as well as a few other places but try not to notice those ;) ) I am 6 months pregnant with our baby boy. I guess I never did a formal announcement on my blog. :)