We had Riley's appointment with Dr. Percy last Friday. Unfortunately it came in the middle of her being sick with a fever and not eating for a couple of days. So her weight was down (29.5) which means her BMI was below the critical level so we got the G-tube talk. While we agree that she really does need to gain weight, we think that if she hadn't been sick her BMI would have been about where it was last time. She goes to see the neurologist in a couple weeks and I'm hoping her weight is back up in the 30s then.
Over the weekend Riley seemed to get better and eat more and more including vitamins and milk with instant breakfast that she hasn't been willing to eat/drink in a while! Today the kids are out of school thanks to some icy weather. Riley woke up and ate a normal breakfast but now she seems like she's getting worse again and has been doing this most of the day: