Monday, May 25, 2009

IRSF Conference 2009

We are back, and this year's conference was awesome!!! Not to say last year's wasn't, but last year was so soon after Riley's diagnosis and I was in a fog a lot of the weekend. This year I was able to have fun and really soak up a lot of the information.

The resort we stayed at in Leesburg, Virginia was gorgeous! The conference kept us busy, of course, but we did manage to get out for about an hour one day and hit golf balls which was a great way to unwind after a long day of sitting in sessions!

Sunday night we went out for dinner with a couple we met last year, and their gorgeous daughter Caitlyn. We also met more people this year, so they joined us too! We all have 4 year old daughters so it's great to think we'll always be together in this - and we hope to meet more people next year. We found out next year's conference will be in Colorado - fun!



After dinner we enjoyed the beautiful Virginia weather and sat outside talking, laughing and listening to the talented Cliff Fry play his guitar. It was the perfect end to a great weekend!


Even though it was much less stressful to go without the kids this year, I have to say I missed this smiling face! And the other two smiling faces, who were busy getting dirty outside when we got home so I only got a picture of Riley. :)





Friday, May 22, 2009

Washington D.C.

Mitch and I are going to the IRSF conference in Virginia this weekend, but we decided to fly in a day early and spend a day seeing the sights! Yesterday we walked around (and walked and walked!) and went in a couple of the museums.

Last night we met my friend Ellie and her boyfriend Rich at a delish Belgian restaurant.

Today Mitch and I agreed we'd go running down the mall - even though we both would have liked to sleep more. My generous mom is back home with the girls and it's just the two of us here, so we figure we'll get to catch up on our sleep at some point this weekend!
Later this morning we're meeting Mitch's cousin at the Pentagon, then we'll probably try to see a few more sights before heading to Virginia for the rest of the weekend. One day is not enough to see much in D.C. so we'll definitely have to plan a trip back sometime!

Monday, May 18, 2009

IEP meeting and a big fat bummer

We had Riley's IEP meeting today for next school year. All went well with that - we agreed with their goals and didn't need to fight anything, not that we expected to. After it was over we stayed to talk with Riley's teacher and she dropped a bombshell on us - she's moving. :( She was supposed to be Riley's teacher next year and we LOVE her so we were so excited for that. She loves Riley too - she was crying while she was telling us. She has learned so much about Rett Syndrome and has become such an advocate for Riley. She is WONDERFUL. I cannot say enough good things about her. We are going to miss her. And it makes me sad that Riley only has 2 days left to be with her. :(

Saturday, May 16, 2009

On the mend

I think Riley is finally getting over whatever it is she had.

Still a lot of this going on:
But she is eating better and her fever is going down. I think (hope) it'll be gone tomorrow and she'll be able to return to school on Monday. There are only 3 days left of school for the year so I hope she can make it to them!!

Thursday, May 14, 2009

I got it


Not really something I wanted but I figure enough of the normal every day things are harder with Riley's diagnosis, so why not make some things easier.

Wednesday, May 13, 2009

Swine Flu

Ok I am not usually much of a hypochondriac, but seriously. Riley is sick and I'm getting more and more worried. I don't think I've ever seen her this sick.

Compare to swine flu symptoms.

  • fever, which is usually high check - took her temp yesterday afternoon and it was 103.8. this is day 4 of fevers like that
  • cough check
  • runny nose or stuffy nose negative on that one at least
  • sore throat check. took her to the doctor Monday and she thought Riley had strep even though test was negative. Her throat is VERY red.
  • body aches hard to say on that one, she can't exactly tell me!
  • headache same as above
  • chills check - even Addy commented on how shaky Riley was yesterday
  • fatigue or tiredness, which can be extreme BIG check. I think Riley has been awake, oh, a TOTAL of 2 hours in the last 4 days?
  • diarrhea and vomiting (sometimes) check

When I took her to the doctor (not her regular doctor, who was booked up Monday) they drew blood but didn't actually tell me what it was for. I am VERY thankful Riley happens to have her regular 4 year checkup this afternoon with her doctor. She has been sleeping constantly and has hardly eaten a thing since Friday night. Ugh. :(

Tuesday, May 12, 2009

Jessica's Wedding

We are back from our whirlwind weekend in Wisconsin!

The girls and I survived our drive from Mississippi to Wisconsin, and it actually wasn't that bad. Addy can be quite helpful when she wants to be. Mitch flew to Wisconsin Friday night (he was at a conference in New York) and spent the weekend with us. Then he and Addy flew home and my mom drove back with me, Riley and Morgan. It was a pretty exhausting weekend but so much fun!

The best part was ... Jessica is married!! She was such a beautiful bride - as you can see here!

Jessica had LOTS of kids in her wedding - so all the girls got to play a part. Addy was a "ring princess" :) and Riley and Morgan walked up and each placed a bird on a tree that represented a person that could not be at the wedding. Very sweet.

Unfortunately, most of the pictures were taken on my mom's camera and she inadvertently deleted them. I'm really hoping someone else took some of all the kids! At least we got a few.

Addy enjoyed every part of the weekend, especially the chance to wear Jessica's veil!


Instead of a cake Jessica had a table full of different desserts and Addy really liked that too, as did the rest of us!
The worst part about the weekend was that Riley got sick. You can see her in the previous picture sleeping in Gramma's arms which is where she spent most of Saturday. She at least woke up long enough to walk down the aisle during the wedding - with the help of Daddy and Aunt Becky. She has not been awake more than about 10 minutes at a time since Saturday. We hope she starts feeling better soon!!

Friday, May 1, 2009

Happy May Day!

Wow I can't believe it's May already. Less than 3 weeks of school left! We have lots planned for this month - all very exciting stuff!

I was looking through pictures this morning - since our computer seems to be dying I figured I better get them up on Snapfish so I don't lose any!

Compare Addy on her 4th Birthday to Riley on her 4th Birthday. Yes they are wearing the same shirt! Everyone is always saying they look alike, but they seem quite different to me. Look at all that hair Addy has. I wish Riley's hair would grow! Oh well, she's just as cute with shoulder-length hair. :)