One year ago today we got the call confirming Riley has Rett Syndrome. This hasn't even been a hard day to come to - it was harder for me the year before we got her diagnosis, not knowing what was going on. As much as I didn't want to hear she had Rett Syndrome I was somewhat relieved to have an explanation and be able to move forward.
I wish I could say she was walking as well as she was a year ago, but hopefully we can strengthen her little legs up and get back to that point. Preschool is wonderful for her and more and more she is learning to communicate with us using her eyes.
I am so grateful for the friends I've made along the way of our journey with Rett Syndrome, and I will continue to fight for a cure for this disease!