Sunday, November 1, 2009

Halloween

A little late, but I wanted to post these pictures from Halloween.


Riley was pretty grumpy at first but finally started smiling when it came time to start trick or treating. I guess she just wanted some candy!



The girls got (and ate) a ton of candy. Addy and Morgan got a little loopy...

And Riley was never so excited to go to bed when it was all over. :)

Sunday, October 18, 2009

Morgan

Morgan was invited to her first birthday party yesterday. It was a little girl in her Mother's Morning Out class and it was pretty cute to see a bunch of 2 and 3 year olds running around. They got to go on a hayride, pick out a pumpkin and then decorate it which Morgan loved!



Sunday, October 11, 2009

new rooms

We switched Morgan and Riley's bedrooms so Riley now has a queen sized bed. I think she likes it!



Her sisters like it too. :)

Monday, September 14, 2009

Birthday Fun!

My birthday was this past Saturday and to celebrate we went to the Kenny Chesney concert in Biloxi. We went with 2 other couples and had so much fun!





















Friday night we went out to dinner at Mary Mahoney's restaurant. The owners have a Rett Girl in the family. We didn't get to see them this time, although we have met them at the Birmingham conference!
Here we are out to dinner (notice the Katrina waterline behind us??? the destruction in Biloxi was unbelievable, and still very apparent).
The girl sitting on my right is my birthday twin - same year and everything! :)

Thursday, August 20, 2009

First Day of School

How could I not post these pictures?

Addy, my big first grader!
Waiting for the bus, which comes at 6:24 this year. Luckily Addy loves school and has yet to have a problem getting up in time!

Riley ready for her second year of preschool!


We decided to try having her ride the bus to school this year, and I think she's pretty excited about it!

Walking to the bus with dad.

Monday, August 10, 2009

summer trip to Wisconsin

I'm backdating this because I'm so behind on this blog!

At the end of July we went on our annual trip up to Wisconsin. The weather this year wasn't the greatest, but we still had fun!

Addy spent a few days with her cousins by herself, and my parents kept Riley and Morgan so I got to go to Minneapolis KID FREE! It was nice to see friends, hang out with my brother and of course go shopping. At this time of the year I miss living there, but when we go in the winter I remember why I don't!

My favorite view of the city
My brother's "white trash burger", complete with fried cheese curds and chicken fried bacon. Yum, yum!

Mitch flew in to Minneapolis and after we picked him up we went to our favorite pizza place.

The rest of our trip was spent in Wisconsin, either at my parents' house or with Mitch's family.

Three girls watching TV :)
Since it was too cold to be on the lake much we went bowling. Everyone had a blast, including Riley!



A not-so-very exciting picture of breakfast but a cute one of the girls anyway!


On our way back home we stopped in Cross Plains, WI and went to a volleyball tournament for Rett Syndrome. We met some great people and hope to go back again!



Overall another short but sweet visit up North!

Tuesday, July 14, 2009

Gait Trainer



Riley had PT today and we brought home this gait trainer to try out for a few days. It's big (why do they have to make this stuff so big?!?) but it does the job! The PT likes this one because we can lock it in place and she can just stand - which is the main reason Dr. Percy wants us to get one, so she can be on her feet without us having to hang onto her all the time - or it can move around and she can walk with it. Riley's not too into that feature right now, but the PT is hoping she'll like being more independant and start walking around more.
Riley has been walking more and more without holding our hands lately, which is so exciting! We don't leave her side because if she falls she doesn't catch herself at all, but it's very nice to see her walking more!

Friday, June 26, 2009

UAB visit and a general update

Today we went to Birmingham to visit Dr. Percy and Jane Lane. The first thing I want to point out is driving to Birmingham and back in one day is exhausting! Next time we are staying in a hotel the night before. We brought the whole family this time and everyone did very well.

Riley overall is looking good. They think we should get her a gait trainer though - she really should be standing a lot during the day but she doesn't like standing without holding our hand so rather than us becoming the stander, we should get one for her. She has a PT appointment Tuesday, so I'll talk about it then.

She hasn't gained any weight since our last visit though, so I need to make sure to add butter and sugar to everything! Afterwards we went to the Cheesecake Factory for lunch, where she ate lots of greasy cheese pizza. Then we also stopped at Dairy Queen and got her some ice cream so we're off to a good start. :)

I haven't updated much lately - summer is keeping us busy, busy! We joined a gym and I finally got brave enough to take all the girls to the childcare and I'm so glad I did. I really was just worried they wouldn't know how to handle Riley, but as it turns out I didn't need to worry at all. I am so impressed with this childcare - we've seen them helping Riley "draw", and they have her play out on the playground. Most of the time they feed her snacks, since that's her favorite thing to do, but at least they don't sit her down and leave her in one spot the whole time.

We also got a membership to the country club that is part of our neighborhood so we have TONS to do now. I've been taking tennis lessons, and Mitch is already on a league. And I've gone to a ladies golf clinic they have once/week and Mitch and I have been able to golf together a few times now. But most of our time is spent at the pool! Unfortunately even the pool is pretty hot for Riley - but we take her in once it shades over, which isn't until after 7:00 at night. I should probably try mornings but the pool doesn't open until 10:00 and it's about 90 degrees by then - Riley does not like the heat!

So that's pretty much been our summer - go go go! In a couple weeks my mom flies down and then will drive up to Wisconsin with me. Then before we know it we'll be back and school will be starting. Time flies!

Wednesday, June 10, 2009

Addy's prayer

Addy went to Vacation Bible School last week and made this. It made me laugh and cry at the same time!



"I pray for Riley my sister because she has a really bad problem so I still love her"

She read it to me, so I'd know what she was trying to say. She can read pretty well but spelling is another issue. :)

summertime!

School has been out for a few weeks now and we are enjoying the summer! The weather has been beautiful (and hot!) so we've been spending time at the pool when Mitch is home. I can't see myself taking all 3 by myself - Morgan is quite the little daredevil now and pretty much needs one person to just watch her the whole time. But we are having fun for sure!




Mitch's sister is here with her family - I need to remember to get out my camera one of these days. The kids are having so much fun together and we are spending lots of time in the pool and lake. Our boat is finally getting some use!

Monday, May 25, 2009

IRSF Conference 2009

We are back, and this year's conference was awesome!!! Not to say last year's wasn't, but last year was so soon after Riley's diagnosis and I was in a fog a lot of the weekend. This year I was able to have fun and really soak up a lot of the information.

The resort we stayed at in Leesburg, Virginia was gorgeous! The conference kept us busy, of course, but we did manage to get out for about an hour one day and hit golf balls which was a great way to unwind after a long day of sitting in sessions!

Sunday night we went out for dinner with a couple we met last year, and their gorgeous daughter Caitlyn. We also met more people this year, so they joined us too! We all have 4 year old daughters so it's great to think we'll always be together in this - and we hope to meet more people next year. We found out next year's conference will be in Colorado - fun!



After dinner we enjoyed the beautiful Virginia weather and sat outside talking, laughing and listening to the talented Cliff Fry play his guitar. It was the perfect end to a great weekend!


Even though it was much less stressful to go without the kids this year, I have to say I missed this smiling face! And the other two smiling faces, who were busy getting dirty outside when we got home so I only got a picture of Riley. :)





Friday, May 22, 2009

Washington D.C.

Mitch and I are going to the IRSF conference in Virginia this weekend, but we decided to fly in a day early and spend a day seeing the sights! Yesterday we walked around (and walked and walked!) and went in a couple of the museums.

Last night we met my friend Ellie and her boyfriend Rich at a delish Belgian restaurant.

Today Mitch and I agreed we'd go running down the mall - even though we both would have liked to sleep more. My generous mom is back home with the girls and it's just the two of us here, so we figure we'll get to catch up on our sleep at some point this weekend!
Later this morning we're meeting Mitch's cousin at the Pentagon, then we'll probably try to see a few more sights before heading to Virginia for the rest of the weekend. One day is not enough to see much in D.C. so we'll definitely have to plan a trip back sometime!

Monday, May 18, 2009

IEP meeting and a big fat bummer

We had Riley's IEP meeting today for next school year. All went well with that - we agreed with their goals and didn't need to fight anything, not that we expected to. After it was over we stayed to talk with Riley's teacher and she dropped a bombshell on us - she's moving. :( She was supposed to be Riley's teacher next year and we LOVE her so we were so excited for that. She loves Riley too - she was crying while she was telling us. She has learned so much about Rett Syndrome and has become such an advocate for Riley. She is WONDERFUL. I cannot say enough good things about her. We are going to miss her. And it makes me sad that Riley only has 2 days left to be with her. :(

Saturday, May 16, 2009

On the mend

I think Riley is finally getting over whatever it is she had.

Still a lot of this going on:
But she is eating better and her fever is going down. I think (hope) it'll be gone tomorrow and she'll be able to return to school on Monday. There are only 3 days left of school for the year so I hope she can make it to them!!

Thursday, May 14, 2009

I got it


Not really something I wanted but I figure enough of the normal every day things are harder with Riley's diagnosis, so why not make some things easier.

Wednesday, May 13, 2009

Swine Flu

Ok I am not usually much of a hypochondriac, but seriously. Riley is sick and I'm getting more and more worried. I don't think I've ever seen her this sick.

Compare to swine flu symptoms.

  • fever, which is usually high check - took her temp yesterday afternoon and it was 103.8. this is day 4 of fevers like that
  • cough check
  • runny nose or stuffy nose negative on that one at least
  • sore throat check. took her to the doctor Monday and she thought Riley had strep even though test was negative. Her throat is VERY red.
  • body aches hard to say on that one, she can't exactly tell me!
  • headache same as above
  • chills check - even Addy commented on how shaky Riley was yesterday
  • fatigue or tiredness, which can be extreme BIG check. I think Riley has been awake, oh, a TOTAL of 2 hours in the last 4 days?
  • diarrhea and vomiting (sometimes) check

When I took her to the doctor (not her regular doctor, who was booked up Monday) they drew blood but didn't actually tell me what it was for. I am VERY thankful Riley happens to have her regular 4 year checkup this afternoon with her doctor. She has been sleeping constantly and has hardly eaten a thing since Friday night. Ugh. :(

Tuesday, May 12, 2009

Jessica's Wedding

We are back from our whirlwind weekend in Wisconsin!

The girls and I survived our drive from Mississippi to Wisconsin, and it actually wasn't that bad. Addy can be quite helpful when she wants to be. Mitch flew to Wisconsin Friday night (he was at a conference in New York) and spent the weekend with us. Then he and Addy flew home and my mom drove back with me, Riley and Morgan. It was a pretty exhausting weekend but so much fun!

The best part was ... Jessica is married!! She was such a beautiful bride - as you can see here!

Jessica had LOTS of kids in her wedding - so all the girls got to play a part. Addy was a "ring princess" :) and Riley and Morgan walked up and each placed a bird on a tree that represented a person that could not be at the wedding. Very sweet.

Unfortunately, most of the pictures were taken on my mom's camera and she inadvertently deleted them. I'm really hoping someone else took some of all the kids! At least we got a few.

Addy enjoyed every part of the weekend, especially the chance to wear Jessica's veil!


Instead of a cake Jessica had a table full of different desserts and Addy really liked that too, as did the rest of us!
The worst part about the weekend was that Riley got sick. You can see her in the previous picture sleeping in Gramma's arms which is where she spent most of Saturday. She at least woke up long enough to walk down the aisle during the wedding - with the help of Daddy and Aunt Becky. She has not been awake more than about 10 minutes at a time since Saturday. We hope she starts feeling better soon!!