Yesterday was our 6 month appointment at the UAB Rett Clinic. The good news is Riley is growing well! She weighed 27.2 pounds and I can't remember how tall she is now. But she is staying on the curve, even if it's at the bottom.
They also recommended we start giving her Miralax often, as well as gas drops or GasX. And we can increase her dosage of Prevacid and give it to her twice a day. The prevacid seems to have helped her not be AS crabby but she still is a super crabby little girl. Especially in the evenings. We had one night a few nights ago with no crying and even some smiling - she was giving us high fives and so alert and aware. If we had more days like those I'd be in heaven but they are so few and far between.
I really think something is going on with her stomach so hopefully giving her all this stuff will help!
Morgan got to go with us yesterday and at first was a little scared of Dr. Percy but by the end of the appointment she was having him put her shoes on for her! :)