Monday, November 24, 2008

over the river and through the woods!

We are at Grandma and Grandpa's house! We made the drive overnight Friday night and were up in Northern Wisconsin by Saturday morning.

One of the great things about Grandma and Grandpa's house is the wall of mirrors! Riley has so much fun looking at herself! :)

Tuesday, November 18, 2008

the football player?

Riley's Thanksgiving Feast is tomorrow and the school sent home a note of what item we are supposed to bring.

It always makes me laugh how people butcher our last name. :)

Friday, November 14, 2008

Our 2nd visit to UAB

Yesterday was our 6 month appointment at the UAB Rett Clinic. The good news is Riley is growing well! She weighed 27.2 pounds and I can't remember how tall she is now. But she is staying on the curve, even if it's at the bottom.

They also recommended we start giving her Miralax often, as well as gas drops or GasX. And we can increase her dosage of Prevacid and give it to her twice a day. The prevacid seems to have helped her not be AS crabby but she still is a super crabby little girl. Especially in the evenings. We had one night a few nights ago with no crying and even some smiling - she was giving us high fives and so alert and aware. If we had more days like those I'd be in heaven but they are so few and far between.

I really think something is going on with her stomach so hopefully giving her all this stuff will help!

Morgan got to go with us yesterday and at first was a little scared of Dr. Percy but by the end of the appointment she was having him put her shoes on for her! :)

Thursday, November 6, 2008


Riley is home from school because she's sick today. I guess if there's a good day to stay home it was today since Mitch had to leave at 4:30 this morning for the airport and I would have had to wake up Morgan, who is also sick, to take Riley to school. As it turned out Morgan slept until 10:15 this morning, 3 hours later than usual! And yes, I did check to make sure she was still breathing. :)
Riley is currently on her second nap of the morning. Lots of sleeping and just hanging out going on around here today.

Tuesday, November 4, 2008


Doesn't Riley look so happy to be on the swing?

Actually she was, it's just not a very good picture. :)
Thanks to a wise Rett mom, who happens to live near me, we started Riley on Prevacid last week and she has been much happier. It was getting to the point where she'd cry through breakfast which is normally her best meal of the day. The other mom mentioned acid reflux and I had some prevacid samples hanging around so I tried it and within a day or two we were back to only having our evening fussy time instead of ALL DAY LONG. So that's nice.