So Riley probably is having seizures. The PT was here this morning and saw one of her little episodes and said it looked a lot like what she's seen with other kids. Crap.
We have an EEG scheduled for April 1. I'm supposed to keep her up late, wake her up early and not let her fall asleep on the 2 hour ride there. Should be interesting!
I also took her to a PT/OT therapy place yesterday and it went pretty well. I'm taking her there just for PT but I really liked the OT and just thought the PT was ok. I asked her if she's ever worked with any Rett girls before and she said yes and looked all sad. I hate it when people make me feel like it's the worst possible thing. Way to be a downer. The OT said she's seen lots of girls with RS (not around here but where she used to work in another state) and she also said the only other girl they've seen around here lives in a group home because her parents walked out on her when she was young. So I guess if that's what you think about when you think of a girl with Rett Syndrome it is pretty sad.
Anyway. They worked with Riley for a while and Riley was pretty into it which was good. They want us to keep some toys at a lower level so she's forced to lean forward and not on her heels so much. So I brought the old Leapfrog Table out which was Riley's obsession for a long time and she still likes it! It's nice to see her interested in a toy!
Today the PT from EI came and I guess we'll keep both for now. We'll probably only be here another couple of months anyway. If that.
My mom is leaving today and my IL's are here for the next 3 weeks to help out. It's not the same as my mom but it'll definitely be nice to have the help!